I am sitting here in our small town of 2100 (give or take a baby or 2!) We are at Austin's JFL practice.. One of about 30 he'll have just this month. The kids are having a blast and cant wait for full padded practice to begin. Austin is running drill now and is anxious about the first game. The Blue Ridge JFL Jamboree. August 22 & 23 at the football field in Farmer City.
Drink break now.. then back off to run some more!
Well, guess I'd better watch... he's getting mad!!
Till next time.....
A guide to how I deal with everyday issues brought on by my children and those I call family.
Tuesday, July 21, 2009
Cody's BIG decission...
Cody made the hard decision to NOT go back to Detasseling today. He broke out in this CRAZY rash in the evening, was sick as hell and of course the muscle pain was making it hard for him! We woke him up this morning and gave him the option, totally his choice, of going or not. BUT, it he didnt go, he was done. Of course, the fact he was ill was a big part in his decision..
Austin will be able to do it here in about 3 years! He will be able to do it and while Cody was unable, he's glad to have made what little bit he did...
Hard lesson to learn but, well worth it in the end.
Till next time....
Austin will be able to do it here in about 3 years! He will be able to do it and while Cody was unable, he's glad to have made what little bit he did...
Hard lesson to learn but, well worth it in the end.
Till next time....
Monday, July 20, 2009
Why do we have to be so darn busy these days???
As if our days aren't busy enough. We have to add 4H meeting in LeRoy, JFL practice in Farmer City. Now we are preparing for the McLean County fair from July 29 thru Aug 2 held in Bloomington!! Have TONS of rabbits going there plus posters for hedgehogs and quaker parrots. We are NEVER going to get it all done... Oh well... next year... ONLY RABBITS!!!!
Till next time....
Till next time....
Cody's 1st day Detasseling...
Well, I just went and picked up Cody from the High School in Farmer City. He was SO glad to be done for the day!! He's exausted and is in the shower as I type this.... poor kid.. first time he's actually HAD to work for something (not my fault either!!). Got to dawn a BRIGHT orange baseball cap with a netting on it, cool protective glasses, gloves, rain poncho, work boots and a bright red face!!
While he said he WILL finish out the 2 weeks, he WILL NOT and I quote WILL NOT do it again next year LOL.. yeah, well we'll see once he gets his check (between $784 - $1176 for 14 -20 days work)
He's doing a great job!! I was shocked to hear that he wanted to detassel this year as it is a very hard job!
Till next time!!
Crystal Smith, signing off.......
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Friday, July 10, 2009
Well, it's Friday, what more can I say.
After a really long week... it is finally Friday. We have 2 birthdays to celebrate this weekend... Both on July 12. Brian (the hubby) will be 38 and my son, Cody, will be 13. It's hard to believe that I have a 13 yr old!!!!
We will also be having a moment of silence for a friend that recently passed away just 1 week before her 33rd bday. (We miss you Paula)
So, hopefully, we'll get some good pics done and have a great time!! Cake, Ice Cream and an Ice Cream cake to celebrate!!!
more to come............
We will also be having a moment of silence for a friend that recently passed away just 1 week before her 33rd bday. (We miss you Paula)
So, hopefully, we'll get some good pics done and have a great time!! Cake, Ice Cream and an Ice Cream cake to celebrate!!!
more to come............
Tuesday, July 7, 2009
Small things I've noticed lately...
While many people are enjoying the nice weather Mother Nature has seemed to lay upon us this wonderful July, I realized that not everyone in this world could actually enjoy it.
I look at my kids and ask, "do people really know how lucky they are to have children that are comletely healthy and free of illness and/or disease?" Many parents will never truely know the struggles of a family with even one sick child let alone multiple. From high medical costs to stuggles getting them into school to the everyday living costs that seem to go higher and higher as the days and weeks go on.
One wheelchair co-pay can hit $500 easy, Gait Trainer co-pay can hit $200 easy. Medicine co-pays can be between $10 & $60 and sometimes higher. Drs visits are $25-50 before you look at the cost of gas to get there. Multiple trips to Chicago, St. Louis and talks of heading to Indianapolis means a tank of gas to get there and a tank to get back. With average prices of gas being $2.50 right now in my area, that's damn near $100 for gas just to get her there and back!!!
Fights with drs officies to get scripts sent to where they need to go, fights with the health insurance company to even pay for the stuff she needs, the stresses of knowing she'll never be normal, not like other children in her class. Fights with the schools to make the proper adjustments and reconstruction of areas of the school to get them up to ADA standards is time consuming to say the least.
I have become and advocate for my daughter and encourage others to be the voices of their children as well. I have also become advocates for other children that have no voice and no one to assist with getting them what they need.
Sure, worring about if you're gonna get that new iPod or Wii is great if you have the time and money to worry... But for those of us that have other issues to worry about like where's the moeny going to come from to pay for medical bills we have already or those to come, what about the special meds she needs, how are we gonna pay for the new wheel chair she so desperately needs...
My dear Autumn is now 7 years old, she is free of her feeding tube and 99% of her meds that were "sustaining" her from 1 yr till now. Her only meds are a growth hormone and the occasional tylenol or motrin. We are very happy and thankful for everyday we have with her. Now, that is not saying I am not angry nor jealous of those with healthy children. Because to be honest I am... I am very angry that God made my daughter suffer with an illness that took 6 years to find. I am very jealous that God gave this one a healthy daughter when all I ever wanted was a little girl to call my own. Shopping, hair salon trips.. ya know... the normal stuff moms and daughters do...
I however would not change having Autumn in my life for anything. Not even a healthy Autumn. She is mine.. all mine and I love her to pieces. No matter how bad things seem to be going in our lives, Autumn always seems to make sure we smile at least 10 times a day LOL.
As I sit here and write this, dear Autumn is sitting with her dad eating a bagel and playing Nintendo DS! She is the light of our lives, makes us smile everyday no matter what's going on. She's a happy little girl without a care in the world! She enjoys being with her family and the animals here on the farm. She's a friendly little girl that sees only the good in people. I wish I had that trust, that hope to see the good in things, especially when right now, all is see is greedy, evil, self preserving people.......
Lord, grant me the strength to go on, provide guidance for me so that I may guide others during their struggles in this cruel world. Forgive me for all that I have done or will do in the days to come. Keep my family safe and my friends well. In this your name I pray... AMEN...
Keep family close my friends, love them, respect them, listen to them.. and most of all.. LOVE THEM...
I look at my kids and ask, "do people really know how lucky they are to have children that are comletely healthy and free of illness and/or disease?" Many parents will never truely know the struggles of a family with even one sick child let alone multiple. From high medical costs to stuggles getting them into school to the everyday living costs that seem to go higher and higher as the days and weeks go on.
One wheelchair co-pay can hit $500 easy, Gait Trainer co-pay can hit $200 easy. Medicine co-pays can be between $10 & $60 and sometimes higher. Drs visits are $25-50 before you look at the cost of gas to get there. Multiple trips to Chicago, St. Louis and talks of heading to Indianapolis means a tank of gas to get there and a tank to get back. With average prices of gas being $2.50 right now in my area, that's damn near $100 for gas just to get her there and back!!!
Fights with drs officies to get scripts sent to where they need to go, fights with the health insurance company to even pay for the stuff she needs, the stresses of knowing she'll never be normal, not like other children in her class. Fights with the schools to make the proper adjustments and reconstruction of areas of the school to get them up to ADA standards is time consuming to say the least.
I have become and advocate for my daughter and encourage others to be the voices of their children as well. I have also become advocates for other children that have no voice and no one to assist with getting them what they need.
Sure, worring about if you're gonna get that new iPod or Wii is great if you have the time and money to worry... But for those of us that have other issues to worry about like where's the moeny going to come from to pay for medical bills we have already or those to come, what about the special meds she needs, how are we gonna pay for the new wheel chair she so desperately needs...
My dear Autumn is now 7 years old, she is free of her feeding tube and 99% of her meds that were "sustaining" her from 1 yr till now. Her only meds are a growth hormone and the occasional tylenol or motrin. We are very happy and thankful for everyday we have with her. Now, that is not saying I am not angry nor jealous of those with healthy children. Because to be honest I am... I am very angry that God made my daughter suffer with an illness that took 6 years to find. I am very jealous that God gave this one a healthy daughter when all I ever wanted was a little girl to call my own. Shopping, hair salon trips.. ya know... the normal stuff moms and daughters do...
(Photo above is Autumn during the State Farm Play Day in June 09..... Taken by Crystal R Smith)
I however would not change having Autumn in my life for anything. Not even a healthy Autumn. She is mine.. all mine and I love her to pieces. No matter how bad things seem to be going in our lives, Autumn always seems to make sure we smile at least 10 times a day LOL.
As I sit here and write this, dear Autumn is sitting with her dad eating a bagel and playing Nintendo DS! She is the light of our lives, makes us smile everyday no matter what's going on. She's a happy little girl without a care in the world! She enjoys being with her family and the animals here on the farm. She's a friendly little girl that sees only the good in people. I wish I had that trust, that hope to see the good in things, especially when right now, all is see is greedy, evil, self preserving people.......
Lord, grant me the strength to go on, provide guidance for me so that I may guide others during their struggles in this cruel world. Forgive me for all that I have done or will do in the days to come. Keep my family safe and my friends well. In this your name I pray... AMEN...
Keep family close my friends, love them, respect them, listen to them.. and most of all.. LOVE THEM...
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